Julian Family

~ I have prayed for this child and the Lord has granted me what I asked of Him ~ I Samuel 1:27 ~ For I know the plans I have for you declares the Lord, Plans to prosper you and not to harm you, Plans to give you hope and a future ~ Jeremiah 29:11 Lilypie2nd Birthday Ticker

Monday, February 26, 2007

First Time with a Sippy Cup

I realize most people do not care that this is his first time with a sippy cup. I'm posting about it mostly so that I'll remember what day it was. He really doesn't drink from it yet, just chews on the lid. He's pretty good about getting it to his mouth, though. He is quite the messy eater, so you can see his food smeared all over his face and bib in some of these pics.

6 Months ~ 2/22/07 (Trying Again)

I don't know why these pictures aren't always uploading. I'm going to try one more time...

Max says, "Enough, mom. I'm really bored with all this picture taking."

Friday, February 23, 2007

6 Months ~ 2/22/07

Wednesday, February 21, 2007

Getting Stronger Every Day

Saturday, February 17, 2007


Max and I are traveling to TN today to see my granddad. He's been in the hospital for nearly a month now (off and on) with some heart and lung problems. We haven't seen him since Christmas, so we want to get over there and visit and help out as much as we can. He's a pretty special guy to all of us. He just turned 86 this past November, but I always think of him as if he's about 65 or 70 because that is how he acts (he even still has his natural hair color). The other day he pointed to pictures of his great grandkids in his room and told his nurse that he had to get better for them. Please pray that he will have good health again and please pray for Max and I as we travel. I probably won't post anything new until we get back.

Granddad and Daniel last Christmas

Granddad and Annie

Wednesday, February 14, 2007

Happy Birthday, Annie

Max's cousin Annie is turning 4 today. It is so hard for me to believe that 4 years ago today, I, along with the rest of my family, were standing in the hospital hallway anxiously waiting for the arrival of the first baby in our family. Annie has brought so much joy to all of our lives. She is the sweetest girl and we love her so, so much. I know that she, her brother Daniel, and Max will be big buds in a few years and Max will look forward to the days when he gets to visit them.

Annie helping make Max's quilt

The first time she met her new cousin.

Giving Max sweet kisses.

The three cousins

Prayer Request for Today

I have a quick prayer request for today. Please say a prayer that Max will do well in therapy today. He normally cries almost the entire time we are there. It's really hard to watch and it's not very productive. He usually does fine with me when I do his daily therapy at home, but of course I'm sure I'm not as tough as Liane since I really don't know what I'm doing. Plus, it's a solid hour of really tough work, so it's just hard for him, and at home I can space it out throughout the day. He also has reflux which seems to act up during therapy. I tried something a little different with his routine today that hopefully will make it better. It's just getting to where I dread going because I know he'll likely cry for the whole hour. We also have been moved to therapy 1x week instead of 1x every other week. If you don't see this until tonight or later in the week, please just say a prayer for future therapy.

**Therapy Update**Well, he cried through all of therapy, but I'm hoping that this will eventually get better. Liane was really proud of his new accomplishment, prop sitting, and he did good with that today. Thanks for your prayers.

Monday, February 12, 2007

Look what I can do!

We've tried sitting him up before and the physical therapist has worked on it some, but never before has he been able to just sit up like he did today. He can last for a few seconds and then topples over. He thinks it's fun when he falls.

Wednesday, February 07, 2007

So far so good...

...as far as sleeping is concerned. For 3 nights he has nearly slept through the night. This is incredibly exciting for all in the Julian household. The crying seems to get less each night. His naps are even better during the day than they used to be and I attribute this to his good nighttime sleep.

Most of you reading this probably began this journey with us. I thought today I would share a little of my personal journey and tell you a little about what is on my heart. For 5 months I have not been myself and I'm glad that John loves me like he does because I'm sure I haven't been easy to live with. Last week I talked to a good, christian dr. who does not know me and does not know about Max and I told him our whole story, from my perfect pregnancy up until today. He asked me something that I had never thought about - he asked me if I thought I had grieved over the loss of an expectation. I told him I had cried but that usually when I do that it is over worry or frustration and when Max was in the hospital we cried because we thought our world had just fallen apart. He said it would be very normal and good for me to actually grieve. We had many expectations before Max was born. We expected to come home with our new baby in 1 to 2 days, we expected him to be healthy, we expected life to go on (of course with some changes) as it had before but even better, we expected the days following his birth to be pure bliss, we expected to not have to worry about his future developmentally, cognitively, and over-all health-wise any more than normal, etc. We lost all of those things. I think last night was the first time I actually grieved and the first time I was able to really tell John how I felt about everything that happened. Every night for the past 5 months I lay in bed and replay those first few days over and over in my mind. Watching Max turn blue the night he stopped breathing, watching my new baby lay there and have seizures in the nursery, handing him over to the flight nurse for his helicopter ride, seeing him lay in a bed covered with wires, iv's and tubes in a neonatal intensive care unit, sitting on our bed listening as Dr. Nestrude told us that there was very little possiblity that Max would be fine, the roller coaster of emotions that we went through for nearly a month in the hospital. The fact that for 38 1/2 weeks my baby had never been separated from me - I felt his kicks, his hiccups, he foot sticking in my ribs. And all of a sudden I was without my baby. I couldn't hold him all the time, there were days I couldn't even touch him, and at night I had to leave him. The shock, the pain, and the hurt still feel real today. Of course, along with the loss of what we expected, we gained things that far exceeded our expectations. I never in a million years would have dreamed that it was possible to love another human being in the way you love your child.

You may be thinking, "she should be happy, Max is doing good." Yes. I do have a lot to be happy about. We are blessed far beyond what we deserve. God answered many, many prayers the way that we hoped that he would. We have Max with us, unlike Parker's parents who lost him a month ago. God willing, Max will not require any more surgerys, unlike Gavin who had surgery on his heart on Monday. God willing, Max will not experience more seizures, unlike Harper who had a very, very scary episode last night. Why God chose to make Max progress as he has I may never know. And I am thankful and I praise Him. But it was good to grieve last night. I don't know if it's the last time I'll feel this way or not, but I am thankful to the dr. who told me that it was okay.

**After I originally posted this I checked my email and had a message about another baby who needs prayers. I will paste a portion of the email and add his link to the right so that you can check for updates.**

After a routine visit to the doctor's office for Ethan's eight week checkup, they found a lump and sent us to the hospital. After numberous tests, they have confirmed that Ethan has Leukemia. From all that we know, this is an extremely rare diagnosis considering that he has between a 1,000,00 and 1,500,000 white blood cell count, and he just passed with 2 month birthday. Please visit http://www.ethanpowell.com for the full details. If you would like to send a word of encouragement or prayers, please do so at prayersforethan@yahoo.com. We place our son's health in God's hands and ask for your prayers.

Monday, February 05, 2007


I have decided that I am going to do my best to let Max cry it out in the middle of the night from now on. This is what the pediatrician told me I should do and some friends and my sister (whose kids all sleep through the night) have suggested. I will say, this is hard for me because at 3 a.m. all I can think is that I want quiet sleep and if I just slide that paci back in his mouth he'll dose off for another hour or 2 before he wakes again. Well, last night before going to bed I fixed up the couch with blankets so that when he wakes up I can lay there and hopefully John can continue sleeping. (How he sleeps through the crying, I'll never know. But I'm happy for him that he can.) At 4:30 this morning I hear him stirring and whimpering and I laid completely still. I so did not want to move from my bed. After about 3 minutes, I never heard him again and he slept until 7 a.m. This is always exciting when this happens because it is so rare. I try not to get my hopes up that we have reached a wonderful milestone of sleeping through the night, but I find myself excited today thinking maybe this is it!

Please pray for baby Gavin today. He is having his 2nd heart surgery sometime today. Also, please continue praying for baby Parker's family. It has been right at a month since he went to heaven.

Thursday, February 01, 2007

Max's First Snow