Julian Family

~ I have prayed for this child and the Lord has granted me what I asked of Him ~ I Samuel 1:27 ~ For I know the plans I have for you declares the Lord, Plans to prosper you and not to harm you, Plans to give you hope and a future ~ Jeremiah 29:11 Lilypie2nd Birthday Ticker

Thursday, May 10, 2007

Some Updates

Today Max had an occupational therapy evaluation and it just couldn't have gone better! Karen, the therapist, said that she saw nothing that indicated that he would have long-term deficits. She also said that the muscle tone problems he had early on have seemed to improve and he was able to do the most difficult range of motion with no problems and if he had muscle tone problems then he probably would not have been able to do that. She said many other positive things and for that we are so thankful. She said that because of his birth history she will need to continue to monitor him and reevaluate in 6 months just to be sure that everything continues to be on track.

A family from John's parent's church needs prayers. A baby boy named Kyler was born 8 weeks early and has a Grade 1 brain bleed (on a scale of 1-4, 4 being worst) on one side of his brain. I think this is fairly common in babies born really premature, but of course it is not common to the parents, so they need prayers. They are in the NICU now, probably with many of the same nurses and doctors we had. Most of you know, Max had Grade 3 and 4 brain bleeds, so this really touches my heart.

Also, baby Ethan's leukemia is back in full force. They really need lots of prayers. You can also go to his site to see how to become a bone marrow donor, which they are desperately in need of. There are donation sites being set up all over. I went to one at Harding this week and all you have to do is swab the inside of your mouth. Ethan has something that is very rare and there is not a match for him in the entire national database, he has a 1 in 2 million chance in finding a match, so it is urgent that people get out and get tested.

7 Comments:

At Thu May 10, 06:26:00 PM PDT, Blogger Bryan and Sarah said...

That is great news about Max. I am so happy to hear that. We are still praying for him. I love the new pictures. He is too cute.

By His Grace,
Sarah

 
At Thu May 10, 08:12:00 PM PDT, Blogger Amy S. said...

It's so great to hear that Max is doing well. In light of everything that is happening with little Ethan, it is a great reminder that prayer really works!

 
At Fri May 11, 02:54:00 PM PDT, Blogger Lindsey Eason said...

I am so relieved to hear that he is continuing to get such excellent reports!! What a blessing!! Will be praying for Ethan and the other lil' baby!

 
At Sat May 12, 07:57:00 AM PDT, Anonymous Anonymous said...

Kelly, not long ago we talked about how it was expected that Max would have some degree of deficit due to the grade 4 bleed on the right side of the brain. The grade 3 on the left was bad enough. Most doctors expected the deficit would be physical due to the area of the brain in which the bleed occurred. One of your favorite nurses in the NICU was Margaret and we leaned on her a lot during that time. Margaret shot straight with us but in a loving and caring way. While talking recently we were also recounting what Margaret had said during those first few hours when we asked her what to expect going forward with Max. Margaret said, "I have never seen a baby with a grade 4 brain bleed that did not have some degree of deficit”. Now, when parents facing similar circumstances ask Margaret what the future will hold, she will be able to say "Let me tell you about Max!" I know you are planning on going back to the NICU with Max when he turns one and I know you with thank the doctors and nurses that attended to him but I also know you know from where Max's healing came. I encourage you, when you make that visit, to offer yourself as a resource for the other parents that will face the same uncertainties you and John faced. Knowing you, you are already planning on doing that. Who knows the good that is yet to come from this? You can give hope to those parents and you can point them to the one in which your hope lies. When they ask you what the future will hold for their child you can say to them “Let me tell you about God!” Words cannot express the love your mother and I have for all of you. Papow

 
At Sat May 12, 07:59:00 AM PDT, Anonymous Anonymous said...

Wow, I published that and saw how long it was. Sorry ;-)

 
At Sun May 13, 08:00:00 AM PDT, Anonymous Anonymous said...

Praise God! That is wonderful news guys! Max is so beautiful! Love you, Shauri

 
At Sun May 13, 05:48:00 PM PDT, Blogger Bryan and Sarah said...

Happy Mother's Day Kelly!!!

 

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