Morning update

I talked to Kelly a little while ago and she sounds better this morning. Yesterday the exhaustion was really setting in and the fear of the unknown was taking over. She was very overwhelmed. Thank you for your continued prayers for Max and for Kelly & John. Please continue to pray that they will feel peace that passes all understanding and that they will have strength and endurance to get through today. You have all been such an awesome support system through your cards, comments and notes of encouragement on the blog, and most importantly through your prayers. Please know that while Kelly and John cannot visit with you personally they feel your support and your prayers and will forever be grateful. Thank you for continuing to respect their need to not have visitors at this time. Max is staying awake more and they want to be with him as much as they possibly can. When they do leave the room they need to be getting food or rest. I know it is so hard to not visit because we all want to be doing something. Please believe me when I say, you are doing the most important thing any of us can do....you are bringing our precious Max before His Heavenly Father and we are placing him in God's hands. A dear friend, who went through a similar situation with her daughter, likened her experience to opening a present. However, instead of ripping the wrapping paper off, exposing the present quickly, her present was opened slowly and carefully, one tiny piece of paper at a time. Any time a piece of Max is revealed Kelly and John want to be the ones opening it and revealing it. In order to do this, they have to be with him. Also, they are needing rest. When in Max's room they are able to relax while holding their precious gift and bonding with him. The little energy that they have right now needs to be focused on each other and on Max. Again, please know that we are comforted so much at the thought of so very many people lifting Max, John, & Kelly up to God and we beg you to continue.

They took Max for his CT scan this morning and Kelly and John are hoping to meet with the doctors to discuss the findings early this afternoon.

Max's head circumferance has not changed today. They are not checking his bilirubin level today since it has been dropping. They will recheck it tomorrow.

Max was able to nurse off and on for about an hour today. He was still pretty sleepy but what an encouragement that he is getting his strength back. They are continuing his IV but have decreased the concentration of sugar in his IV fluid. His blood sugar has been holding steady in the 50's.

Max's legs and arms are a little stiff today. They have kept him in the fetal position while in his bed so hopefully now that he is waking and moving more he will loosen up. Kelly & John started doing some stretches and exercises with him today.

I'll update when we have the CT results and plan of care,

We keep praying,
Karie