Julian Family

~ I have prayed for this child and the Lord has granted me what I asked of Him ~ I Samuel 1:27 ~ For I know the plans I have for you declares the Lord, Plans to prosper you and not to harm you, Plans to give you hope and a future ~ Jeremiah 29:11 Lilypie2nd Birthday Ticker

Thursday, August 31, 2006

Max is awake and alert

Max has been waking up more and has been more alert. Kelly said he is kicking his legs and moving his arms. When Kelly and John talk to him he moves his eyes toward their voices. This has been so encouraging to Kelly & John. He is still a little stiff but they are doing their exercises and stretches with him. As I said before, hopefully this is just due to being still and sedated for so long. The physical therapist will be back to evaluate him more tomorrow as well as observe Kelly & John doing his exercises with him.

Thank you so much for your prayers for peace and rest for Kelly & John. She sounds 100 times better today. Obviously still concerned and stressed but hopeful. She wanted me to especially thank the girls Bible class from Harding Academy. Yesterday was a tough day for her and the cards, notes, and Bible verses that she got from you were such an encouragement. That was exactly what she needed yesterday and she thanks you. Keep up the prayers girls!

Max's clotting studies came back good. They plan to run some thyroid tests tomorrow. They don't anticipate this being a problem but they want rule it out. So far all of the metabolic tests that they have run, including the one for homocystinuria, have come back good. They plan to have a metabolic doctor review the findings and make the call.

The neonatologist today, Dr Benton, feels that Max's blood sugar is stablizing. He said that he is really getting very little IV fluid. I think they plan to decrease it gradually to see how he does. It has remained in the 50's.

They plan to hear the CT results from the neurosurgeon either tonight or tomorrow.

They continue to monitor his phenobarb level and are keeping it in therapeutic range. Dr Benton said that he feels that Max will go home on phenobarb. He also said that when they go home they will have a monitor to watch his breathing and heart rate. I know that will ease their minds a little bit.

Dr Benton anticipates that they will be in NICU at least 3 weeks. If a shunt is needed then they will stay until Max has fully recovered from that surgery.

Prayers of Thanksgiving
~Max is alive
~Max hasn't had any seizures in a week
~All metabolic test results have been good
~Max's blood sugar appears to be stablizing
~Max's head circumferance has not grown today
~Max is waking up more and is more alert
~Kelly & John are feeling more peace as they deal with today and look to the future
~So many people are lifting Max, Kelly, & John up in prayer
~Bonding time for Kelly, John, and Max
~Compassionate doctors and nurses taking excellent care of the whole family

Prayer requests
~That the blood in Max's brain will dissolve and be absorbed as if it were never there, leaving healthy brain tissue
~That the thyroid tests tomorrow will go well
~That Kelly & John will continue to feel peace & comfort in God's presence
~That Max will not need a shunt
~That Max will remain seizure free and will be able to be weaned off of the phenobarb without complications
~If Max does need a shunt that the procedure will go well with no complications
~That Max's blood sugar will stablize and that the IV can be stopped for good
~That Kelly & John will have rest and that the rest that they get will be sufficient for them

We keep praying,
Karie

10 Comments:

At Thu Aug 31, 02:46:00 PM PDT, Anonymous Anonymous said...

Karie,

I appreciate what you are doing so much and I know all the family members and John and Kelly do as well.

It is so encouraging to us to read the comments that everyone is posting and I know it is especially encouraging to John and Kelly. The biggest benefactor is Max. Thanks to this site, there is no telling how many people are praying for Max's complete healing.

I love and appreciate you! Dad

 
At Thu Aug 31, 03:06:00 PM PDT, Anonymous Anonymous said...

Praise God for more good news! We are in continual prayer...
The Lord bless you and keep you. We love you.

 
At Thu Aug 31, 04:24:00 PM PDT, Blogger Heather said...

This precious baby and his entire family are in my prayers. You are an amazing sister for doing this as well. Baby Max is already touching so many lives and bringing people closer to the Lord everyday. He is so tiny, but he is having such a huge impact! I can't begin to imagine half of what everyone is going through. My sister had a premature baby 2 weeks ago. She will be in NICU for a few more weeks, so I definitely know how tough it can be on a sister too! I told her about baby Max and she told the nurses and other mothers at the hospital and they are all praying for him.

 
At Thu Aug 31, 04:50:00 PM PDT, Anonymous Anonymous said...

Kelly and John, just want you to know that we are thinking about you constantly.I check to see what Karie has written about ten times a day. Thank you, Karie.We are praying and I think most of the churches in SW MO are also. We just know that little Max is going to be okay. We love you all so much. Uncle Gerald and Aunt Marilyn

 
At Thu Aug 31, 06:26:00 PM PDT, Anonymous Anonymous said...

Hi,

I'm a friend of Hannah Rogers from Kentucky and I just wanted to let you know that baby Max is in our prayers. I have a five month old baby and I can't imagine how difficult all this must be. We'll continue to pray and to check in to be excited about how well Max is doing.

Julie Allen

 
At Thu Aug 31, 07:18:00 PM PDT, Anonymous Anonymous said...

I have been out of town and not able to check the blog several times a day (as I normally do) until tonight (Thursday). I am happy to hear that Max was awake more today and responding. That is very encouraging and Don and I thank God.
Love,
Aunt Dana

 
At Thu Aug 31, 08:17:00 PM PDT, Anonymous Anonymous said...

Praise God for the improvements Max made today. He is able to do immeasurably more than we could ask or imagine. Your faith and strength have been an example to us all. We are still praying for you everyday!
Love, Hannah, Brandon, and Will Siegel

 
At Thu Aug 31, 08:51:00 PM PDT, Anonymous Anonymous said...

Our Young Families Class at Richland Hills Church of Christ was given this blog to pray for Max and his family this week. We have over 100 e-mails that we send our prayer requests to..so you are covered in prayers from Texas. I want you to know that you have touched my heart. I am praying for your family. I pray that you have a peace and rest this weekend. I pray that little Max will just keep improving. He is a beautiful baby!

God bless your family.
Love,
Danyelle

 
At Fri Sep 01, 06:22:00 AM PDT, Anonymous Anonymous said...

Max,

We continue to pray for Max and to recruit others to do the same. May God grant you peace today, and may today be full of good news! Love, Josh, Jean, and Will Bostic

 
At Sun Sep 03, 03:14:00 PM PDT, Anonymous Anonymous said...

John, Kelly and Max, I pray you all feel hugged, comforted and at peace, the Lord Jesus is your strength and your best friend.

Your family and you are in our continual prayers and are great examples of how we should all rely on our Lord at all times.

We love you! Joan and Jessica

 

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